Veterans with ALS Reporting Act

[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[H.R. 6001 Introduced in House (IH)]

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119th CONGRESS
  1st Session
                                H. R. 6001

To require the Secretary of Veterans Affairs to submit a report on risk 
     reduction strategies to lower the incidence and prevalence of 
               amyotrophic lateral sclerosis in veterans.


_______________________________________________________________________


                    IN THE HOUSE OF REPRESENTATIVES

                           November 10, 2025

 Mr. Crow (for himself, Mr. Calvert, Ms. Sewell, and Mr. Fitzpatrick) 
 introduced the following bill; which was referred to the Committee on 
                           Veterans' Affairs

_______________________________________________________________________

                                 A BILL


 
To require the Secretary of Veterans Affairs to submit a report on risk 
     reduction strategies to lower the incidence and prevalence of 
               amyotrophic lateral sclerosis in veterans.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Veterans with ALS Reporting Act''.

SEC. 2. REPORT ON AMYOTROPHIC LATERAL SCLEROSIS IN VETERANS.

    (a) In General.--Not later than one year after the date of the 
enactment of this Act, the Secretary of Veterans Affairs, in 
consultation with the Director of the Centers for Disease Control and 
Prevention, shall submit to Congress a report on the incidence and 
prevalence of amyotrophic lateral sclerosis (commonly known as 
``ALS''). Such report shall include--
            (1) an assessment of the incidence and prevalence of 
        amyotrophic lateral sclerosis in veterans (as defined in 
        section 101 of title 38, United States Code);
            (2) a description of the resources and support that the the 
        Centers for Disease Control and the Department of Veterans 
        Affairs provides to veterans with amyotrophic lateral 
        sclerosis;
            (3) a description of any deficiencies in the resources and 
        support described in paragraph (2);
            (4) a strategy to develop and test risk reduction 
        strategies intended to lower the incidence and prevalence of 
        amyotrophic lateral sclerosis among veterans;
            (5) a strategy to develop a pathway for veterans receiving 
        amyotrophic lateral sclerosis care within Department of 
        Veterans Affairs clinics to participate in clinical trials and 
        research sponsored by the Department of Veterans Affairs; and
            (6) any recommendations for the enactment of legislation to 
        address the challenges or needs associated with lowering the 
        incidence and prevalence of amyotrophic lateral sclerosis among 
        veterans.
    (b) Tracking of Amyotrophic Lateral Sclerosis in Members and 
Veterans.--The Secretary of Veterans Affairs shall track the prevalence 
of amyotrophic lateral sclerosis in veterans using the amyotrophic 
lateral sclerosis registry and biorepository of the Centers for Disease 
Control and Prevention.
    (c) Subsequent Reports.--Not later than three years after the date 
of the enactment of this Act, and every three years thereafter, the 
Secretary of Veterans Affairs shall submit to Congress an update to the 
report required under subsection (a) and information on the prevalence 
of amyotrophic lateral sclerosis tracked under subsection (b).
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