(This measure has not been amended since it was passed by the House on June 24, 2014. The summary of that version is repeated here.)
Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act of 2014 - (Sec. 2) Requires the Secretary of Health and Human Services (HHS) to designate an official to oversee national autism spectrum disorder (ASD) research, services, and support activities. Directs the official to implement such activities taking into account the strategic plan developed by the Interagency Autism Coordinating Committee (the Interagency Committee) and ensure that duplication of activities by federal agencies is minimized.
Extends through FY2019: (1) the developmental disabilities surveillance and research program; (2) the autism education, early detection, and intervention program; and (3) the Interagency Committee.
(Sec. 3) Includes support for regional centers of excellence in ASD and other developmental disabilities epidemiology as a purpose of grants or cooperative agreements.
(Sec. 4) Requires information and education activities to be culturally competent. Allows a lead agency coordinating activities at the state level to include respite care for caregivers. Allows the use of research centers or networks for the provision of training in respite care and for research to determine practices for interventions to improve the health of individuals with ASD.
(Sec. 5) Revises responsibilities of the Interagency Committee concerning:
Revises Interagency Committee membership requirements to specify additional federal agencies that might be represented and to modify the non-federal membership.
(Sec. 6) Modifies requirements for reports by the Secretary on ASD activities. Adds a requirement for a report to Congress concerning young adults with ASD and the challenges related to the transition from existing school-based services to those available during adulthood.
(Sec. 7) Authorizes appropriations to carry out the developmental disabilities surveillance and research program, the education, early detection, and intervention program, and the Interagency Committee for FY2015-FY2019.
[113th Congress Public Law 157]
[From the U.S. Government Publishing Office]
[[Page 128 STAT. 1831]]
Public Law 113-157
113th Congress
An Act
To reauthorize certain provisions of the Public Health Service Act
relating to autism, and for other purposes. <<NOTE: Aug. 8,
2014 - [H.R. 4631]>>
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled, <<NOTE: Autism
Collaboration, Accountability, Research, Education, and Support Act of
2014. 42 USC 201 note. 42 USC 280i note. Consultation.>>
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Autism Collaboration, Accountability,
Research, Education, and Support Act of 2014'' or the ``Autism CARES Act
of 2014''.
SEC. 2. NATIONAL AUTISM SPECTRUM DISORDER INITIATIVE.
(a) In General.--The Secretary of Health and Human Services shall
designate an existing official within the Department of Health and Human
Services to oversee, in consultation with the Secretaries of Defense and
Education, national autism spectrum disorder research, services, and
support activities.
(b) Duties.--The official designated under subsection (a) shall--
(1) implement autism spectrum disorder activities, taking
into account the strategic plan developed by the Interagency
Autism Coordinating Committee under section 399CC(b) of the
Public Health Service Act (42 U.S.C. 280i-2(b)); and
(2) ensure that autism spectrum disorder activities of the
Department of Health and Human Services and of other Federal
departments and agencies are not unnecessarily duplicative.
SEC. 3. RESEARCH PROGRAM.
Section 399AA of the Public Health Service Act (42 U.S.C. 280i) is
amended--
(1) in subsection (a)(1), by inserting ``for children and
adults'' after ``reporting of State epidemiological data'';
(2) in subsection (b)(1)--
(A) by striking ``establishment of regional centers
of excellence'' and inserting ``establishment or support
of regional centers of excellence''; and
(B) by inserting ``for children and adults'' before
the period at the end;
(3) in subsection (b)(2), by striking ``center to be
established'' and inserting ``center to be established or
supported''; and
(4) in subsection (e), by striking ``2014'' and inserting
``2019''.
SEC. 4. AUTISM INTERVENTION.
Section 399BB of the Public Health Service Act (42 U.S.C. 280i-1) is
amended--
[[Page 128 STAT. 1832]]
(1) in subsection (b)(1), by inserting ``culturally
competent'' after ``provide'';
(2) in subsection (c)(2)(A)(ii), by inserting ``(which may
include respite care for caregivers of individuals with an
autism spectrum disorder)'' after ``services and supports'';
(3) in subsection (e)(1)(B)(v), by inserting before the
semicolon the following: ``, which may include collaborating
with research centers or networks to provide training for
providers of respite care (as defined in section 2901)'';
(4) in subsection (f), by striking ``grants or contracts''
and all that follows through ``for individuals with'' and
inserting ``grants or contracts, which may include grants or
contracts to research centers or networks, to determine the
evidence-based practices for interventions to improve the
physical and behavioral health of individuals with''; and
(5) in subsection (g), by striking ``2014'' and inserting
``2019''.
SEC. 5. INTERAGENCY AUTISM COORDINATING COMMITTEE.
Section 399CC of the Public Health Service Act (42 U.S.C. 280i-2) is
amended--
(1) in subsection (b)--
(A) in paragraph (1)--
(i) by striking ``and annually update''; and
(ii) by striking ``intervention'' and
inserting ``interventions, including school and
community-based interventions'';
(B) by striking paragraph (2);
(C) by redesignating paragraph (1) as paragraph (2),
and inserting before such redesignated paragraph the
following:
``(1) monitor autism spectrum disorder research, and to the
extent practicable services and support activities, across all
relevant Federal departments and agencies, including
coordination of Federal activities with respect to autism
spectrum disorder;'';
(D) in paragraph (3), by striking ``recommendations
to the Director of NIH'';
(E) in paragraph (4), by inserting before the
semicolon the following: ``, and the process by which
public feedback can be better integrated into such
decisions''; and
(F) by striking paragraphs (5) and (6) and inserting
the following:
``(5) <<NOTE: Strategic plan.>> develop a strategic plan
for the conduct of, and support for, autism spectrum disorder
research, including as practicable for services and supports,
for individuals with an autism spectrum disorder and the
families of such individuals, which shall include--
``(A) proposed budgetary requirements; and
``(B) recommendations to ensure that autism spectrum
disorder research, and services and support activities
to the extent practicable, of the Department of Health
and Human Services and of other Federal departments and
agencies are not unnecessarily duplicative; and
``(6) submit to Congress and the President--
``(A) an annual update on the summary of advances
described in paragraph (2); and
[[Page 128 STAT. 1833]]
``(B) an annual update to the strategic plan
described in paragraph (5), including any progress made
in achieving the goals outlined in such strategic
plan.'';
(2) in subsection (c)--
(A) in paragraph (1)--
(i) by striking the paragraph designation, the
heading, and the matter preceding subparagraph (A)
and inserting the following:
``(1) Federal membership.--The Committee shall be composed
of the following Federal members--'';
(ii) in subparagraph (C)--
(I) by inserting ``, such as the
Administration for Community Living,
Administration for Children and
Families, the Centers for Medicare &
Medicaid Services, the Food and Drug
Administration, and the Health Resources
and Services Administration'' before the
semicolon at the end; and
(II) by adding at the end ``and'';
(iii) in subparagraph (D)--
(I) by inserting ``and the
Department of Defense'' after
``Department of Education''; and
(II) by striking at the end ``;
and'' and inserting a period; and
(iv) by striking subparagraph (E);
(B) in paragraph (2)--
(i) in the paragraph heading, by striking
``Additional'' and inserting ``Non-federal'';
(ii) in the matter preceding subparagraph (A),
by striking ``Not fewer than 6 members of the
Committee, or \1/3\ of the total membership of the
Committee, whichever is greater'' and inserting
``Not more than \1/2\, but not fewer than \1/3\,
of the total membership of the Committee'';
(iii) in subparagraph (A), by striking ``one
such member shall be an individual'' and inserting
``two such members shall be individuals'';
(iv) in subparagraph (B), by striking ``one
such member shall be a parent or legal guardian''
and inserting ``two such members shall be parents
or legal guardians''; and
(v) in subparagraph (C), by striking ``one
such member shall be a representative'' and
inserting ``two such members shall be
representatives''; and
(C) by adding at the end the following:
``(3) Period of appointment; vacancies.--
``(A) Period of appointment for non-federal
members.--Non-Federal members shall serve for a term of
4 years, and may be reappointed for one or more
additional 4-year terms.
``(B) Vacancies.--A vacancy on the Committee shall
be filled in the manner in which the original
appointment was made and shall not affect the powers or
duties of the Committee. Any member appointed to fill a
vacancy for an unexpired term shall be appointed for the
remainder of such term. A member may serve after the
expiration
[[Page 128 STAT. 1834]]
of the member's term until a successor has been
appointed.'';
(3) in subsection (d)--
(A) by striking paragraph (2); and
(B) by redesignating paragraphs (3) and (4) as
paragraphs (2) and (3), respectively; and
(4) in subsection (f), by striking ``2014'' and inserting
``2019''.
SEC. 6. REPORTS.
Section 399DD of the Public Health Service Act (42 U.S.C. 280i-3) is
amended--
(1) in the section heading, by striking ``report'' and
inserting ``reports'';
(2) in subsection (b), by redesignating paragraphs (1)
through (9) as subparagraphs (A) through (I), respectively, and
realigning the margins accordingly;
(3) by redesignating subsections (a) and (b) as paragraphs
(1) and (2), respectively, and realigning the margins
accordingly;
(4) by inserting after the section heading the following:
``(a) Progress Report.--'';
(5) in subsection (a)(1) (as so redesignated)--
(A) by striking ``2 years after the date of
enactment of the Combating Autism Reauthorization Act of
2011'' and inserting ``4 years after the date of
enactment of the Autism CARES Act of 2014'';
(B) by inserting ``and the Secretary of Defense''
after ``the Secretary of Education''; and
(C) by inserting ``, and make publicly available,
including through posting on the Internet Web site of
the Department of Health and Human Services,'' after
``Representatives''; and
(6) in subsection (a)(2) (as so redesignated)--
(A) in subparagraph (A), (as so redesignated), by
striking ``Combating Autism Act of 2006'' and inserting
``Autism CARES Act of 2014'';
(B) in subparagraph (B) (as so redesignated), by
striking ``particular provisions of Combating Autism Act
of 2006'' and inserting ``amendments made by the Autism
CARES Act of 2014'';
(C) by striking subparagraph (C) (as so
redesignated), and inserting the following:
``(C) information on the incidence and prevalence of
autism spectrum disorder, including available
information on the prevalence of autism spectrum
disorder among children and adults, and identification
of any changes over time with respect to the incidence
and prevalence of autism spectrum disorder;'';
(D) in subparagraph (D) (as so redesignated), by
striking ``6-year period beginning on the date of
enactment of the Combating Autism Act of 2006'' and
inserting ``4-year period beginning on the date of
enactment of the Autism CARES Act of 2014 and, as
appropriate, how this age varies across population
subgroups'';
(E) in subparagraph (E) (as so redesignated), by
striking ``6-year period beginning on the date of
enactment of the Combating Autism Act of 2006'' and
inserting ``4-year period beginning on the date of
enactment of the
[[Page 128 STAT. 1835]]
Autism CARES Act of 2014 and, as appropriate, how this
age varies across population subgroups'';
(F) in subparagraph (F) (as so redesignated), by
inserting ``and, as appropriate, on how such average
time varies across population subgroups'' before the
semicolon at the end;
(G) in subparagraph (G) (as so redesignated)--
(i) by striking ``including by various
subtypes,'' and inserting ``including by severity
level as practicable,''; and
(ii) by striking ``child may'' and inserting
``child or other factors, such as demographic
characteristics, may''; and
(H) by striking subparagraph (I) (as so
redesignated), and inserting the following:
``(I) a description of the actions taken to
implement and the progress made on implementation of the
strategic plan developed by the Interagency Autism
Coordinating Committee under section 399CC(b).''; and
(7) by adding at the end the following new subsection:
``(b) Report on Young Adults and Transitioning Youth.--
``(1) In general.--Not later than 2 years after the date of
enactment of the Autism CARES Act of 2014, the Secretary of
Health and Human Services, in coordination with the Secretary of
Education and in collaboration with the Secretary of
Transportation, the Secretary of Labor, the Secretary of Housing
and Urban Development, and the Attorney General, shall prepare
and submit to the Committee on Health, Education, Labor, and
Pensions of the Senate and the Committee on Energy and Commerce
of the House of Representatives, a report concerning young
adults with autism spectrum disorder and the challenges related
to the transition from existing school-based services to those
services available during adulthood.
``(2) Contents.--The report submitted under paragraph (1)
shall contain--
``(A) demographic characteristics of youth
transitioning from school-based to community-based
supports;
``(B) an overview of policies and programs relevant
to young adults with autism spectrum disorder relating
to post-secondary school transitional services,
including an identification of existing Federal laws,
regulations, policies, research, and programs;
``(C) proposals on establishing best practices
guidelines to ensure--
``(i) interdisciplinary coordination between
all relevant service providers receiving Federal
funding;
``(ii) coordination with transitioning youth
and the family of such transitioning youth; and
``(iii) inclusion of the individualized
education program for the transitioning youth, as
prescribed in section 614 of the Individuals with
Disabilities Education Act (20 U.S.C. 1414);
``(D) comprehensive approaches to transitioning from
existing school-based services to those services
available during adulthood, including--
[[Page 128 STAT. 1836]]
``(i) services that increase access to, and
improve integration and completion of, post-
secondary education, peer support, vocational
training (as defined in section 103 of the
Rehabilitation Act of 1973 (29 U.S.C. 723)),
rehabilitation, self-advocacy skills, and
competitive, integrated employment;
``(ii) community-based behavioral supports and
interventions;
``(iii) community-based integrated residential
services, housing, and transportation;
``(iv) nutrition, health and wellness,
recreational, and social activities;
``(v) personal safety services for individuals
with autism spectrum disorder related to public
safety agencies or the criminal justice system;
and
``(vi) evidence-based approaches for
coordination of resources and services once
individuals have aged out of post-secondary
education; and
``(E) proposals that seek to improve outcomes for
adults with autism spectrum disorder making the
transition from a school-based support system to
adulthood by--
``(i) increasing the effectiveness of programs
that provide transition services;
``(ii) increasing the ability of the relevant
service providers described in subparagraph (C) to
provide supports and services to underserved
populations and regions;
``(iii) increasing the efficiency of service
delivery to maximize resources and outcomes,
including with respect to the integration of and
collaboration among services for transitioning
youth;
``(iv) ensuring access to all services
necessary to transitioning youth of all
capabilities; and
``(v) encouraging transitioning youth to
utilize all available transition services to
maximize independence, equal opportunity, full
participation, and self-sufficiency.''.
SEC. 7. AUTHORIZATION OF APPROPRIATIONS.
Section 399EE of the Public Health Service Act (42 U.S.C. 280i-4) is
amended--
(1) in subsection (a), by striking ``fiscal years 2012
through 2014'' and inserting ``fiscal years 2015 through 2019'';
(2) in subsection (b), by striking ``fiscal years 2011
through 2014'' and inserting ``fiscal years 2015 through 2019'';
and
[[Page 128 STAT. 1837]]
(3) in subsection (c), by striking ``$161,000,000 for each
of fiscal years 2011 through 2014'' and inserting ``$190,000,000
for each of fiscal years 2015 through 2019''.
Approved August 8, 2014.
LEGISLATIVE HISTORY--H.R. 4631:
---------------------------------------------------------------------------
HOUSE REPORTS: No. 113-490 (Comm. on Energy and Commerce).
CONGRESSIONAL RECORD, Vol. 160 (2014):
June 24, considered and passed House.
July 31, considered and passed Senate.
<all>
Committee Consideration and Mark-up Session Held.
Ordered to be Reported (Amended) by Voice Vote.
Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 113-490.
Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 113-490.
Placed on the Union Calendar, Calendar No. 365.
Mr. Pitts moved to suspend the rules and pass the bill, as amended.
Considered under suspension of the rules. (consideration: CR H5688-5693)
DEBATE - The House proceeded with forty minutes of debate on H.R. 4631.
Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.(text: CR H5688-5690)
On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H5688-5690)
Received in the Senate, read twice.
Passed/agreed to in Senate: Passed Senate without amendment by Unanimous Consent.(consideration: CR 8/1/2014 S5312)
Enacted as Public Law 113-157
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Passed Senate without amendment by Unanimous Consent. (consideration: CR 8/1/2014 S5312)
Message on Senate action sent to the House.
Presented to President.
Presented to President.
Signed by President.
Signed by President.
Became Public Law No: 113-157.
Became Public Law No: 113-157.