Expresses support for: (1) the goals and ideals of Fragile X Awareness Day; (2) raising awareness and educating the public about fragile X syndrome and associated disorders; and (3) funding for research into the causes, treatment, and cure for fragile X syndrome.
Applauds efforts to encourage awareness, promote research, and provide education, support, and hope to those impacted by fragile X syndrome. Recognizes the commitment of those dedicated to finding an effective treatment and cure.
Urges physicians, health care providers, and specialists, with respect to the syndrome and related disorders, to: (1) learn the clinical signs and symptoms; (2) use diagnostic, developmental screening, and surveillance modalities for detection; (3) test individuals exhibiting signs of developmental delay or an autism spectrum disorder to determine the status of their FMR1 gene; (4) gain a full understanding of the genetic implications and make appropriate referrals to a geneticist or genetic counselor; and (5) provide diagnosed patients with supplemental information.
Recommends that the National Institutes of Health (NIH) and related member institutes implement the research plan on fragile X syndrome and associated disorders developed by the Trans-NIH Fragile X Research Coordinating Group and Scientific Working Groups.
Introduced in House
Introduced in House
Referred to the House Committee on Energy and Commerce.
Referred to the Subcommittee on Health.
Mr. Pallone moved to suspend the rules and agree to the resolution, as amended.
Considered under suspension of the rules. (consideration: CR H5880-5882)
DEBATE - The House proceeded with forty minutes of debate on H. Res. 611.
Passed/agreed to in House: On motion to suspend the rules and agree to the resolution, as amended Agreed to by voice vote.(text: CR H5880)
On motion to suspend the rules and agree to the resolution, as amended Agreed to by voice vote. (text: CR H5880)
Motion to reconsider laid on the table Agreed to without objection.
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