A resolution designating February 25, 2006, as "National MPS Awareness Day".

(This measure has not been amended since it was introduced. The summary of that version is repeated here.)

Designates February 25, 2006, as National MPS Awareness Day (mucopolysaccharidosis is a genetically determined lysosomal storage disorder that renders the body incapable of producing certain enzymes needed to break down complex carbohydrates).

[Congressional Bills 109th Congress]
[From the U.S. Government Publishing Office]
[S. Res. 378 Agreed to Senate (ATS)]








109th CONGRESS
  2d Session
S. RES. 378

   Designating February 25, 2006, as ``National MPS Awareness Day''.


_______________________________________________________________________


                   IN THE SENATE OF THE UNITED STATES

                           February 16, 2006

 Mr. Graham (for himself, Mr. Chambliss, Mr. Feingold, Mr. Kohl, Mrs. 
  Murray, Ms. Collins, Ms. Snowe, Ms. Murkowski, Mrs. Feinstein, Mr. 
  Brownback, Mrs. Dole, Mr. Jeffords, and Mr. Specter) submitted the 
        following resolution; which was considered and agreed to

_______________________________________________________________________

                               RESOLUTION


 
   Designating February 25, 2006, as ``National MPS Awareness Day''.

Whereas Mucopolysaccharidosis (referred to in this preamble as ``MPS'') is a 
        genetically determined lysosomal storage disorder that renders the human 
        body incapable of producing certain enzymes needed to breakdown complex 
        carbohydrates;
Whereas complex carbohydrates are then stored in almost every cell in the body 
        and progressively cause damage to those cells;
Whereas the cell damage adversely affects the human body by damaging the heart, 
        respiratory system, bones, internal organs, and central nervous system;
Whereas the cellular damage caused by MPS often results in mental retardation, 
        short stature, corneal damage, joint stiffness, loss of mobility, speech 
        and hearing impairment, heart disease, hyperactivity, chronic 
        respiratory problems, and, most importantly, a drastically shortened 
        life span;
Whereas the nature of the disorder is usually not apparent at birth;
Whereas without treatment, the life expectancy of an individual afflicted with 
        MPS begins to decrease at a very early stage in the life of the 
        individual;
Whereas recent research developments have resulted in the creation of limited 
        treatments for some MPS disorders;
Whereas promising advancements in the pursuit of treatments for additional MPS 
        disorders are underway;
Whereas, despite the creation of newly developed remedies, the blood brain 
        barrier continues to be a significant impediment to effectively treating 
        the brain, thereby preventing the treatment of many of the symptoms of 
        MPS;
Whereas treatments for MPS will be greatly enhanced with continued public 
        funding;
Whereas the quality of life for individuals afflicted with MPS, and the 
        treatments available to them, will be enhanced through the development 
        of early detection techniques and early intervention;
Whereas treatments and research advancements for MPS are limited by a lack of 
        awareness about MPS disorders;
Whereas the lack of awareness about MPS disorders extends to those within the 
        medical community;
Whereas the damage that is caused by MPS makes it a model for many other 
        degenerative genetic disorders;
Whereas the development of effective therapies and a potential cure for MPS 
        disorders can be accomplished by increased awareness, research, data 
        collection, and information distribution;
Whereas the Senate is an institution than can raise public awareness about MPS; 
        and
Whereas the Senate is also an institution that can assist in encouraging and 
        facilitating increased public and private sector research for early 
        diagnosis and treatments of MPS disorders: Now, therefore, be it
    Resolved, That the Senate--
            (1) designates February 25, 2006, as ``National MPS 
        Awareness Day''; and
            (2) supports the goals and ideals of ``National MPS 
        Awareness Day''.
                                 <all>