Expresses the sense of Congress that: (1) individuals diagnosed with bone marrow failure diseases and their families should have access to a variety of treatment and counseling options; and (2) such families should be linked to support networks and counseling information serviced provided by nonprofit organizations like the Aplastic Anemia & MDS International Foundation.
Calls for the federal government to: (1) raise awareness about the importance of early detection of and proper treatment for such diseases; (2) provide adequate funding for research on such diseases; (3) engage in such public health initiatives as surveillance, education, and awareness of such diseases; and (4) continue to consider ways to improve health care services for such diseases.
Introduced in House
Introduced in House
Referred to the House Committee on Energy and Commerce.
Referred to the Subcommittee on Health.
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